It's been a week since I started this blog. So far, the entries have been mostly humorous stories about Kevin. But I have hopes that this blog will eventually focus not just on Kevin and me, but on other relevent issues involving siblings (aka "Sibs") of those with disabilities. I hope to comment on housing and legal issues, Social Security Disability and social activity, among other topics. That's a big goal, and I'm not going to push it. I hope it will come in time.
I've very recently become involved with a group here in New York called AHRC, an organization that offers services to people with intellectual and developmental disabilities and their families. I attended a fundraiser last night supporting the AHRC Siblings Committee, and I'm so looking forward to working with this group.
There's an instant shorthand when talking with others who have brothers and sisters like Kevin. You just get each other. I spent time last night meeting other Sibs and chatting about where they "fit" in their family dynamic. One of the trickiest things, I believe, is learning to be OK with having your own life and not giving it up entirely for your brother or sister's needs. There's a lot of potential for guilt there.
Whew - those last two sentences were difficult to write.
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